Tijaabada dhidid ee Cystic Fibrosis

Qanacsan

• Waa maxay baaritaanka dhididka?
• Maxaa loo adeegsadaa?
• Maxaan ugu baahanahay baaritaanka dhididka?
• Maxaa dhacaya inta lagu jiro baaritaanka dhididka?
• Ma u baahanahay inaan sameeyo wax walba si aan ugu diyaargaroobo imtixaanka?
• Ma jiraan wax khatar ah oo imtaxaanku leeyahay?
• Maxay natiijooyinka ka dhigan yihiin?
• Ma jiraan wax kale oo aan u baahanahay inaan ka ogaado baaritaanka dhididka?
• Tixraacyo

Waa maxay baaritaanka dhididka?

Tijaabada dhididka ayaa cabiraysa xaddiga chloride, qayb ka mid ah cusbada, dhididka. Waxaa loo isticmaalaa in lagu baaro cystic fibrosis (CF). Dadka qaba CF waxay leeyihiin heer sare oo chloride ah dhididkooda.

CF waa cudur sababa xabka sanbabada iyo xubnaha kale.Waxay dhaawacdaa sambabaha oo neefta ayey ku adkeysaa. Waxay kaloo u horseedi kartaa caabuqyo soo noqnoqda iyo nafaqo-xumo. CF waa cudur la iska dhaxlo, oo macnaheedu yahay inuu ka sii gudbinayo waalidkaa, una marayo hiddo-wadaha.

Hiddo-wadayaashu waa qaybo ka mid ah DNA-da oo xambaarsan macluumaad go'aamiya astaamahaaga gaarka ah, sida dhererka iyo midabka indhaha. Hidda-wadaha ayaa sidoo kale mas'uul ka ah dhibaatooyinka caafimaad qaarkood. Si aad u yeelato cystic fibrosis, waa inaad ka heshaa hidda-wadaha CF hooyada iyo aabbaha labadaba. Haddii hal waalid kaliya hidde wadaha leeyahay, cudurka ma qaadi doontid.

Magacyada kale: baaritaanka dhididka chloride, baaritaanka dhididka cystic fibrosis, electrolytes dhididka

Maxaa loo adeegsadaa?

Tijaabada dhididka ayaa loo isticmaalaa in lagu baaro cystic fibrosis.

Maxaan ugu baahanahay baaritaanka dhididka?

Tijaabada dhididka ayaa lagu ogaan karaa cystic fibrosis (CF) dadka da 'kasta leh, laakiin badanaa waxaa lagu sameeyaa carruurta. Canugaaga waxaa laga yaabaa inuu u baahdo baaris dhidid haddii isaga ama iyadu ay iska baaraan cudurka CF ee baaritaanka dhiigga ee dhallaanka caadiga ah. Dalka Mareykanka, dhallaanka cusub waxaa badanaa laga baaraa xaalado kala duwan oo ay ka mid yihiin CF. Badi tijaabooyinka dhididka waxaa la sameeyaa markay dhallaanka yihiin 2 ilaa 4 toddobaad.

Ilmo weyn ama qof weyn oo aan waligiis laga baarin CF wuxuu u baahan karaa baaritaanka dhidid cystic fibrosis ah haddii qof qoyska ka tirsan uu qabo cudurka iyo / ama uu leeyahay astaamaha CF. Kuwaas waxaa ka mid ah:

• Maqaarka dhadhamiya cusbada
• Qufac joogto ah
• Infekshannada sambabaha ee soo noqnoqda, sida oof wareenka iyo boronkiitada
• Neefsashada oo dhib ah
• Ka gaabinta miisaanka oo kordho, xitaa haddii aad leedahay rabitaan wanaagsan
• Saxaro, saxarado waaweyn
• Dhallaanka cusub, saxaro lama sameeyo isla dhalashada ka dib

Maxaa dhacaya inta lagu jiro baaritaanka dhididka?

Bixiyahaaga daryeelka caafimaad wuxuu u baahan doonaa inuu soo qaado shaybaar dhidid ah si loo baaro. Nidaamka oo dhan wuxuu qaadan doonaa saacad waxaana laga yaabaa inuu ku jiro talaabooyinka soo socda:

• Bixiyaha xanaanada caafimaadka ayaa pilocarpine, daawo sababa dhidid, dul dhigaya meel yar oo ka mid ah gacanta hore.
• Bixiyahaagu wuxuu elektrolig ku dhejin doonaa aaggan.
• Xilliga daciifka ah ayaa lagu soo diri doonaa korantada. Xilligan xaadirka ah ayaa ka dhigaya dawada inay maqaarka ku dhex daadato. Tani waxay sababi kartaa xoogaa xoqid ama diirimaad.
• Ka dib markaad ka saartid koronto-bixiyaha, adeeg bixiyahaagu wuxuu ku duubi doonaa gabal warqad shaandheeya ama faashad ah gacanta hore si uu u soo ururiyo dhididka.
• Dhidid ayaa la ururin doonaa 30 daqiiqo.
• Dhididka la ururiyey ayaa loo diri doonaa shaybaar si loo baaro.

Ma u baahanahay inaan sameeyo wax walba si aan ugu diyaargaroobo imtixaanka?

Uma baahnid wax diyaargarow ah oo gaar ah oo loogu talagalay baaritaanka dhididka, laakiin waa inaad iska ilaalisaa inaad wax kareemo ah ama kareemo ah u marin maqaarka muddo 24 saacadood ka hor howsha.

Ma jiraan wax khatar ah oo imtaxaanku leeyahay?

Ma jiraan wax khatar ah oo la og yahay oo ka imanaya baaritaanka dhididka. Cunugaaga waxaa laga yaabaa inuu dareemo cuncun ama cuncun ka yimaadda korantada, laakiin waa inuusan dareemin wax xanuun ah.

Maxay natiijooyinka ka dhigan yihiin?

Haddii natiijooyinka ay muujiyaan chloride heer sare ah, waxaa jirta fursad wanaagsan oo ah in ilmahaagu qabo cystic fibrosis. Bixiyahaaga daryeelka caafimaad ayaa laga yaabaa inuu dalbado baaritaan dhidid kale iyo / ama baaritaano kale si loo xaqiijiyo ama meesha looga saaro ogaanshaha cudurka. Haddii aad su'aalo ka qabtid natiijooyinka ilmahaaga, la hadal daryeel caafimaad bixiyahaaga.

Wax badan ka baro baaritaanka shaybaarka, kala duwanaanshaha tixraaca, iyo fahamka natiijooyinka.

Ma jiraan wax kale oo aan u baahanahay inaan ka ogaado baaritaanka dhididka?

In kasta oo aan daawo loo helin cystic fibrosis (CF), haddana waxaa jira daaweyn la heli karo oo gacan ka geysanaya yareynta astaamaha iyo hagaajinta tayada nolosha. Haddii ilmahaaga laga helay CF, kala hadal daryeel caafimaad bixiyahaaga xeeladaha iyo daaweynta lagu caawinayo maaraynta cudurka.

Tixraacyo

1. Ururka Sambabka Mareykanka [Internet]. Chicago: Ururka Sambabka Mareykanka; c2018. Baadhista iyo Daaweynta Cystic Fibrosis [oo lagu sheegay 2018 Mar 18]; [ilaa 4 shaashadood]. Waxaa laga heli karaa: http://www.lung.org/lung-health-and-diseases/lung-disease-lookup/cystic-fibrosis/diagnosing-and-treating-cf.html
2. Aasaaska Cystic Fibrosis [Internet]. Bethesda (MD): Cystic Fibrosis Foundation; Ku saabsan Cystic Fibrosis [oo la soo xigtay 2018 Mar 18]; [ilaa 2 shaashad]. Waxaa laga heli karaa: https://www.cff.org/What-is-CF/About-Cystic-Fibrosis
3. Aasaaska 'Cystic Fibrosis Foundation' (Internetka). Bethesda (MD): Cystic Fibrosis Foundation; Tijaabada Dhididka [daliishaday 2018 Mar 18]; [ilaa 3 shaashad]. Waxaa laga heli karaa: https://www.cff.org/What-is-CF/Testing/Sweat-Test
4. Hinkle J, Cheever K. Brunner & Suddarth's Buug-gacmeedka Shaybaarka iyo Tijaabooyinka Baaritaanka. Ed 2aad, shidan Philadelphia: Wolters Kluwer Health, Lippincott Williams & Wilkins; c2014. Tijaabada Dhididka; bog. 473-74.
5. Johns Hopkins Medicine [Internetka]. Baltimore: Jaamacadda Johns Hopkins; Maktabadda Caafimaadka: Cystic Fibrosis [oo la soo xigtay 2018 Mar 18]; [ilaa 3 shaashad]. Waxaa laga heli karaa: https://www.hopkinsmedicine.org/healthlibrary/conditions/adult/respiratory_disorders/cystic_fibrosis_85,p01306
6. Tijaabooyinka Shaybaarka ee Internetka [Internetka] Washington DC: Ururka Mareykanka ee Kiimikada Caafimaadka; c2001–2018. Cystic Fibrosis [cusbooneysiiyay 2017 Oct 10; daliishaday 2018 Mar 18]; [ilaa 2 shaashad]. Waxaa laga heli karaa: https://labtestsonline.org/conditions/cystic-fibrosis
7. Tijaabooyinka Shaybaarka ee Internetka [Internetka] Washington DC: Ururka Mareykanka ee Kiimikada Caafimaadka; c2001–2018. Baadhitaanka Ilmaha dhashay [cusbooneysiiyay 2018 Mar 18; daliishaday 2018 Mar 18]; [ilaa 2 shaashad]. Waxaa laga heli karaa: https://labtestsonline.org/screenings/newborns
8. Tijaabooyinka Shaybaarka ee Internetka [Internetka] Washington DC: Ururka Mareykanka ee Kiimikada Caafimaadka; c2001–2018. Tijaabada Dhididka Koloriinta [cusbooneysiiyay 2018 Mar 18; daliishaday 2018 Mar 18]; [ilaa 2 shaashad]. Waxaa laga heli karaa: https://labtestsonline.org/tests/sweat-chloride-test
9. Nooca Merck Manual Consumer Version [Internet]. Kenilworth (NJ): Shirkadda Merck & Co. c2018. Cystic Fibrosis (CF) [oo la soo xigtay 2018 Mar 18]; [ilaa 2 shaashad]. Waxaa laga heli karaa: https://www.merckmanuals.com/home/children-s-health-issues/cystic-fibrosis-cf/cystic-fibrosis-cf
10. Machadka Wadnaha, Sambabka, iyo Machadka Dhiiga [Internet]. Bethesda (MD): Waaxda Caafimaadka iyo Adeegyada Aadanaha ee Mareykanka; Cystic Fibrosis [oo la soo xigtay 2018 Mar 18]; [ilaa 3 shaashad]. Waxaa laga heli karaa: https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis
11. Jaamacadda Rochester Medical Center [Internet]. Rochester (NY): Jaamacadda Rochester Medical Center; c2018. Encyclopedia Health: Cystic Fibrosis Dhidid Tijaabin ah [daliishaday 2018 Mar 18]; [ilaa 2 shaashad]. Waxaa laga heli karaa: https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid;=cystic_fibrosis_sweat
12. Caafimaadka UW [Internetka]. Madison (WI): Jaamacadda Wisconsin Isbitaalada iyo Maamulka Rugta; c2018. Macluumaadka Caafimaadka: Xaqiiqooyinka Caafimaadka ee adiga: Tijaabada Dhididka Carruurta [cusbooneysiiyay 2017 Meey 11; daliishaday 2018 Mar 18]; [ilaa 3 shaashad]. Waxaa laga heli karaa: https://www.uwhealth.org/healthfacts/parenting/5634.html
13. Caafimaadka UW: Isbitaalka Carruurta Qoyska ee Mareykanka [Internet]. Madison (WI): Jaamacadda Wisconsin Isbitaalada iyo Maamulka Rugta; c2018. Caafimaadka Carruurta: Cystic Fibrosis [oo la soo xigtay 2018 Mar 18]; [ilaa 5 shaashad]. Waxaa laga heli karaa: https://www.uwhealthkids.org/kidshealth/kids/kids-health-problems/heart-lungs/cystic-fibrosis/22267.html
14. Caafimaadka UW: Isbitaalka Carruurta Qoyska ee Mareykanka [Internet]. Madison (WI): Jaamacadda Wisconsin Isbitaalada iyo Maamulka Rugta; c2018. Caafimaadka Carruurta: Cystic Fibrosis (CF) Tijaabada Dhididka Dhiigga Chloride [oo lagu xusay 2018 Mar 18]; [ilaa 5 shaashad]. Waxaa laga heli karaa: https://www.uwhealthkids.org/kidshealth/parents/general-health/sick-kids/cystic-fibrosis-(cf)-chloride-sweat-test/24942.html

Macluumaadka ku yaal boggan waa in aan loo isticmaalin beddel daryeel caafimaad oo xirfad leh ama talo. La xiriir bixiye daryeel caafimaad haddii aad su'aalo ka qabtid caafimaadkaaga.